Disability Nonfiction

I enjoy following Taussig on Instagram and loved getting to know her better through this memoir-in-essays. She details her life as a wheelchair-user and what it was like growing up paralyzed in the 90s and early 2000s, including the subpar disability rep she saw on-screen. This book is her invitation for us to reconsider the ableism around us, in our lives and in media, and what accessibility really looks like and why it matters. Well-written, vulnerable, and humorous.
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Johnson is an author, attorney, and disability rights activist. Due to a congenital neuromuscular disease, she’s always needed assistance with her daily care and uses a motorized wheelchair. Her life defies assumptions about disability. Her memoir details her pursuit of a law career and her activism and also includes profound meditations on death and pleasure.
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Like many, I first learned of Hannah Gadsby through her Netflix special Nanette. It was an incredibly personal show in which the comedian took on homophobia, gendered violence, and more. At the time, she said she was quitting comedy but lucky for us, she didn’t. Here she takes us behind the scenes of creating the show, including what it was like being a queer person from Tasmania, where homosexuality was illegal until 1997, and her decision to tell the truth, no matter the cost. She also shares about being diagnosed with autism and ADHD as an adult and how her relationship to comedy evolved. I really appreciated the way this contextualizes her experiences, both in the special and her personal life.
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From the publisher: "'I am in a bar in Brooklyn, listening to two men, my friends, discuss whether my life is worth living.' So begins Chloé?Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor 'pain calculations' into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as 'less than.' The way she has been seen—or not seen—has informed her lens on the world her entire life. She resisted this reality by excelling academically and retreating to 'the neutral room in her mind' until it passed. But after unexpectedly becoming a mother (in violation of unspoken social taboos about the disabled body), something in her shifts, and Jones sets off on a journey across the globe, reclaiming the spaces she’d been denied, and denied herself. From the bars and domestic spaces of her life in Brooklyn to sculpture gardens in Rome; from film festivals in Utah to a Beyoncé concert in Milan; from a tennis tournament in California to the Killing Fields of Phnom Penh, Jones weaves memory, observation, experience, and aesthetic philosophy to probe the myths underlying our standards of beauty and desirability and interrogates her own complicity in upholding those myths."
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Leland, now in his 40s, wasn’t diagnosed with retinitis pigmentosa until college, despite years of knowing something was wrong with his vision. At some point, he’ll have no vision left and this starts him on a journey of adaptation and exploration. Part memoir, part nonfiction history and cultural examination, Leland’s experience and relationship to his own blindness starts out by mirroring systemic ableism and moves toward acceptance. A thought-provoking and thoughtful read.
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Chronic illnesses and autoimmune diseases are on the rise but they remain difficult to diagnose and are often misunderstood, leading to years of pain, discomfort, and even medical abuse for patients. Author Meghan O’Rourke understands this on a personal level, detailing her quest for answers, no matter how many doctors dismissed her symptoms. By talking with doctors, patients, and researchers, she explores how the Western model of medicine impacts those living with invisible illnesses, hitting those who are part of marginalized communities the hardest. She also profiles innovators within the field and discusses how the increasing number of long COVID patients could hopefully lead to better care.
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Comedic essayist Samantha Irby’s latest essay collection touches on chronic illness, life during quarantine, new career opportunities, and so much more.
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